Location: Boston, Massachusetts
Reporting to: Executive Director, Global Patient Advocacy
Job Summary
Orchard Therapeutics is a global gene therapy leader dedicated to transforming the lives of people affected by rare diseases through the development of innovative, curative cell and gene therapies. Orchard has its global headquarters in London and U.S. headquarters in Boston, and is a wholly owned subsidiary of Kyowa Kirin, a Japan-based Global Specialty Pharmaceutical Company.
The Associate Director, Patient Advocacy will be responsible for leading relationship development with advocacy groups in aligned therapeutic areas, other relevant allied organizations and establishing new connections to further enhance our advocacy efforts. Primary geographic responsibility includes the U.S., with additional oversight of Canada and Latin America. By providing strategic input and executing on departmental strategy, this position is key in building and strengthening the patient advocacy function. The role requires demonstrated leadership and the ability to collaborate effectively with cross-functional teams, ensuring the patient perspective is integrated across both internal and external partnerships.
Key Responsibilities
- Partner with advocacy groups and patients to ensure the patient voice is integrated into clinical development, regulatory and market access discussions.
- Build and maintain mutually beneficial relationships with key patient advocacy groups and community leaders.
- Collaborate with external and internal stakeholders on relevant advocacy initiatives including efforts to support the advancement of newborn screening.
- Work closely with internal teams, including clinical development, regulatory affairs, diagnostics, medical affairs, and commercial teams to align advocacy engagement with corporate objectives and the needs of patients.
- Champion the patient voice and experience internally to inform the Company’s decision-making and communications, and to educate and inspire employees.
- Represent Orchard at conferences, patient-related events and stakeholder forums to support the goals of the patient advocacy strategy.
- Role model corporate values and behaviors; comply with legal and regulatory requirements and corporate SOPs and uphold the highest ethical standards.
Experience & Knowledge
- Minimum 5 years of experience in similar functions: Patient Advocacy, Public Affairs, Government Relations, Medical Affairs environment; minimum 3 years of experience in Patient Advocacy role within industry.
- Track record of leading projects or initiatives that focus on improving patient care, providing resources for patients, and representing their interests.
- Relationship-building experience with patients, caregivers, healthcare providers, and advocacy groups.
- Strong knowledge of the rare disease landscape, including challenges patients face, the regulatory environment, and relevant policy issues.
- Familiarity with clinical trial processes.
- Understanding of newborn screening as a Public Health program is valued.
Skills & Competencies
- Excellent communication, negotiation, and interpersonal skills.
- Ability to lead in a start-up environment, building partnerships and collaboration.
- Strategic thinker with the ability to influence without direct authority.
- Ability to work independently with a proactive approach within a fast-paced and evolving environment with organizational flexibility.
- Flexibility to travel regularly (50-70%) for meetings and events within the US and limited international travel.
- English proficiency required. Proficiency in Spanish/ Portuguese is a plus.
Education
- Bachelor’s degree required and advanced degree in healthcare, public health, or health related field preferred.
...About the Job: Hair Stylist- Full-time & Part-time positions available: MUST HAVE MICHIGAN COSMETOLOGY LICENSE Great Clips is seeking passionate individuals to join our dynamic team in Big Rapids Michigan. Immerse yourself in a culture that values creativity...
..., and we are hiring multiple, highly motivated, and empathetic Police Officers to perform law enforcement activities necessary to ensure... ...medical, dental and vision insurance benefits in addition to retirement benefits. Benefit eligibility may be based on job...
...solutions, including HR/HCM technology, managed services, and global business process outsourcing (BPO). The company and its service... ...Find out more by visiting. Position Summary The Business Consultant is responsible for prospecting and selling Solvo products and...
...daily operations, manage company resources efficiently, and ensure a high level of employee productivity. Collaborate with the Marketing... ...experience in a general management role, preferably in the high-tech or manufacturing sectors. Strong leadership skills with the...
...About Us Clayco is a full-service, turnkey real estate development, master planning, architecture, engineering, and construction firm... ...projects. The Role We Want You For The Structural Designer II will be working with in-house Development, Architecture, and...